Love is...having Walter home!

Patty says: Walter is doing great!! He is alert and getting stronger everyday. I was reading the paper in the kitchen yesterday and sneezed and he said "Bless You". He is also rolling from side to side very well. He is reading more and sleeping a lot less. I hope to get him out of the house to outpatient therapy soon. He is still infection free except for a little eye infection. He is getting excited about Christmas and enjoys his new Christmas tree. I am still confident that we are watching a miracle in progress. All of this still depends on the love and support of his family and friends. I would love to see his work friends stop by. This would mean the world to Walter.

Thanks to all that have visited Walter. He really enjoys these visits and needs to see people to keep his brain going. Our friend Bernie was over and after listening to us chat for hours yelled out "Hey Bernie." Thanks to all for the wonderful deliveries of delicious food. This helps me so much and I will have more time to spend with Walter. Thanks again to Timmy for the stretching of the arm. That is a full time job in itself. Thanks to all of the "Guys" that are sitting at the side of Walter's bed for their bravery and support. There is a place in heaven for you all!! You are also special and loved by Walter and I!! Feel free to stop over-just call first in case I am busy with Walter.

Christmas Cheer

Joanne said...
Knowing how much Walter loves the snow, I decided to pay him a little visit on the first snowy day of the season. I presented him with a little cake inscribed with, "Let It Snow." He placed it next to him on the bed and listened while I read him the card I brought. He took the card, spread it out on his bed and seemed to reread it.
Very interested in his surroundings. He did appear to be a bit restless until Patty took off his left "boot" and right "sock." After that he settled back to study the company. My mother and I chatted away and he seemed to listen intently. I admired the "new" Christmas tree by the fireplace and Walter watched as Patty and I hung a few ornaments. When asked if he thought we should put on red ornaments he just looked at me and did not really respond. I then said, "How about gold?" His eyes brightened and he shook his head yes and repeated, "gold!" As the minutes passed Walter became more alert and watchful, appearing to study us with intensity. I found him listening with interest as I talked with Patty. I am amazed at how "young" he looks." Pat is a super nurse and seems to know just what he needs at any given minute.

The visit was delightful and as we were getting ready to leave I picked up my hand and blew Walter a "KISS!!" Now, in all the years I've known him I have never done that. WELL, HE GOT THE BIGGEST KICK OUT OF IT!" A grin lit up his face from ear to ear. I could see the mischievious Walter come to life as he picked up his hand and "combed" his hair back. That's the Walter we all know and love - ready to tease and be teased.
I laughed all the way home. This visit sure made my day. All of us who visit are rewarded with some, little "Walterism!" He continues to make progress with the warm and loving care of Patty, his family , and all of his friends!

On The Up and Up

Hi all,
it seems such a long time since I have written a blog but here goes. I got to spend a great few hours with Walt and Patti yesterday morning. Walt had just finished physical therapy and the aide was giving him a bath when I arrived so I got to give Patty a much needed neck massage. I had promised her one after I gave Walt one after Thanksgiving.

The house is so busy with people coming and going all the time. The visiting nurse arrived with a student in tow and the female quotient went up to 5 to 1. Walt seems to be enjoying all the attention.

I was so happy to be able to have something of a conversation with him again. Albeit a whispered one. He is alert and the Walt facial expressions and wry comments are back.

The speech therapist arrived and he was going very well at matching words. The funniest thing was when she asked him what he wanted for Christmas and he said a new head!! Oh dear.

This will be my last post for a couple of months as I am going to Australia to visit my family so I am hoping that you all will write plenty of comments so i can keep up with the the world of Walt.

Cheers
Corinne

Thanksgiving

Patty says: We had a great Thanksgiving with Walter being home. We have lots to be thankful for!!! Thanks to all that visited Walter. He really needs this stimulation to get better. Thanks too for all your dishes. This gives me more time to take care of Walter.

For those that want to visit, just call first. You may visit any time. If it is not a good time, I will let you know.

Thanks to Dick for helping Brian with his shelf. It looks great and now it will not fall.

Please continue to pray for his continuing recovery. He still needs to walk and talk. We are having some breakthroughs with words. I sneezed and he said "Bless You" and he asked Lindsay what time it was. He was pretty aware and awake for the holiday and really seemed to enjoy it.

He will be going out Friday for his 1st Dr's appt. He will surely be tired after his appt. He is having therapy and basically they are starting from scratch. We need lots of prayers and thoughts to get him through this. I truly believe that he will recover. It will just take a long, long time. Thanks to St. Jude for favors received! Please continue to help us through this difficult time.

Walter at Home - Chapter Two

Patty says: Walter is doing great!! He is saying more words every day and is getting more alert!! The aids are wonderful too! We are in the process of getting therapy going but when visitors come I put them to work with therapy, stretching, item identifying, writing on an etch a sketch, looking at books and putting shapes in a box (which he has mastered by the way). When you come over for a visit, bring some ideas for therapy with you-more ideas wanted!!

Thanks to all that have brought a dish-it really helps me to have more time with Walter. Thanks to Marsha and Lori for running errands for me!! Thanks to Alyce and Joanne for the offer of Turkey dinner for Thanksgiving. Thanks to all that have sent Walter cards. He loves to open them and read them. He is truly my hero and a real survivor. I am sure that is because of the friends who have supported him and the love that they have shown him. That is really the most important thing in the world-family and friends. We have the best family you could ever ask for and we love you all - I just wish you were all in town so we could see you and hug you every day. I always knew you were so special-since I met you when I was just 15 years old. Aunt Anna-you are so special-You are my 2nd mother. You are Lucy Rabitz the 2nd. My special, special mother-in-law who is now-in spirit helping me take care of her baby-and I am so so glad to do it. I love you Walter!!!

That is all for now. Dinner is calling. I will soon have some visiting times for Walter. Will keep you posted.

Please continue to send Walter wishes via computer too!! We will be reading these to him.

Just type your comment. Press Other-then publish your comment.

Walter at Home - Chapter One

Patty says: Walter has been home for 4 1/2 days. He is doing great. Although this is as demanding as 2 sets of triplets it is so worth it to have my sweetie home to us. It is great for me to wake up and see him.

I have to get through l hr changes and 2 hr to get his pills ready for the week. The wash is endless and meal times come just as I finish the first one. I have to thicken all of his liquids and turn him every 2 hrs.

The rewards are endless. I say" Are you my sweetie" and he says "definitely." Brian had a concert Thurs and he heard us discussing the plans for the evening. He said "What time are you leaving" Wow 5 words!! He is soo happy to be home. I will take any help I can get. Right now I have an aid for 2 hrs 3 times a week. I am hoping to get an aid for 5 days. I am working on this. Insurance can be a pain. I read a great article in today's paper. To get through the hard times in life "It's not the cards dealt, but how you play them" We live because life takes courage, and because, thank God, we are blessed and taught by the example of those who have it. I am grateful that my husband survived this horrific accident and I still have hime to take care of. In sickness and health., I will be there for him.

Thanks again, to those friends who have helped us get through the "good times" and the "bad times." You are all a strong bunch and I am so lucky you have helped us. You all know who you are and we love you all!!

Thanks to my brother Joe, my Mom, Tippy, Jean, Aunt Anna and Joanne, of course, and Rick and Corinne to help me through this difficult adjustment. Thanks to all of the phone calls this week to see how things were going. This will help me get through this difficult time!! Thanks for the offers of Walter sitting and the food deliveries.

Keep praying for his complete recovery and for his caregiver to be the wife that she should be at this difficult time in his life. I love you Walter!~!!!

Also, if you are reading this blog, please send Walter a get well note and I will read them to him. Thanks! Just click other-then publish your comment after you type your message.

Homeward Bound

Patty says: 1/2 of my dream has come true. Walter is not going back to the nursing home. He is coming home to Brian and I. Monday is the big day!! I will have visiting nurses and aids coming until he (maybe) goes to Albany to the brain rehab. I think it will help to be in his own environment with his kitty on his lap. I will also be able to monitor his drinking so that he does not get dehydrated. And being at home, I am hoping to keep infections at bay. Once we get settled, you may visit him.

Thanks again to all that have supported us over the past 8 months. It has been a long, difficult road that will continue until he is walking, talking and making our favorite meals-toasted, of course, with a glass of wine. Keep the prayers coming-we need them!!

I Have A Dream!

Quick update from the field: All was quiet last night in room 2109. Walt would not wake up for me despite a few mild cheek pinches (do what depths have I sunk?), slaps to the arms and wrists, and various and sundry methods of verbal stimulation. But he did seem comfortable and that right arm is now more relaxed. He no longer looks like he is constantly ready to say the pledge of allegance.

I had a very vivid dream last night that I need to share: I went to the hospital to see Walt, and there he was like he's been so often in the past few weeks, asleep and unresponsive. I tried to wake him, as I have so often in the past few weeks, and he didn't budge.

A minute later he yawned, woke up, sat up, and moved his right arm down from the I-pledge-allegance-to-the-flag position and upon noticing the blood and ripped flesh (the hand must have somehow fused to his chest skin) said "ah shit!". Then he looked at me and said hello, asked how I was doing etc. etc. I was amazed and excited, I went to grab the phone to call Patty but he said that he wanted to do the honors. Although concerned that the spontaneous excitement might be too much for Patty's heart to take, I simply sat in utter amazement and gratitude while he dialed the phone (yes, dialed, it's a dream, OK?) and began a matter-of-fact conversation with Patty.

About the only thing that nobody can take away from us is our dreams.

May Walt be free from his suffering caused by this injury.

Cousin Rick

Patty says: Walter had a good weekend. He was alert and said several words in English. He still seems pretty congested though. He is eating well and would welcome your visit at Parke Ridge Hospital.

Thanks for your continued support during this difficult time!! Cheryl-thanks for your visit Fri. night. You are an amazing friend. Marsha and Jim-Thanks for the pasta dish-Brian and I really enjoyed it. Dave and Gail-thanks for taking my boat to the barn. It will be nice and protected for the winter. As always, thanks to Timmy for keeping Walter company at lunch. You are such a gift to us. I love you all!!!Keep the prayers coming! There is still lots to pray for!!

Lindsay says: I saw my dad awake for the first time in awhile this wekeend. He also seemed perkier than the last few times I have seen him. It is amazing how much he has been through but he still just keeps fighting. I am sad that we will not have the pleasure of carving pumpkins with him this Halloweeen - he is a masterful pumpkin carver! I brought him a stuffed pumpkin this weekend though so he will not feel out of the Halloween spirit this week :) Please continue to keep him in your thoughts!

Update

Patty says: Walter is still at Park Ridge. His eyes are open, he is eating, and he was actually moving his left leg up and down yesterday. I have not seen movement like that-ever. He does have a "slight" pneumonia but he does sound very congested.

Keep the prayers coming. He is quite the fighter and I am soo proud of him!!!

Not Good News

Patty says: Sunday 2:30 p.m.-Walter is going back to Park Ridge. Fever, Lethargic.


Corinne Says: Our prayers and love are with you and our dear Walter.

Quick FYI

My dad is being moved back to the Hurlbut today just so everyone knows. More updates to follow...

Park Ridge 2

Patty says:
Brian-Go in the main entrance. Visiting hours are from 11:00-8:00.

Yesterday, (Wed.) he was having another good day. Eyes wide open and communicating with me I tried to get him to write his name and I at least got an "R" out of him. He looked at the paper and a WWII magazine that I brought up for him. The dr. came in and he is trying to get to the bottom of this CDif he keeps getting since our Strong days. At the moment, he is on just heavy liquids because his swallowing test showed that he cannot tolerate food. Hopefully, that will change soon.
Thanks to everyone for their all their help during this difficult time. Thanks Bob and Dave for helping me with the boat. Thanks to Dave W. for also helping me with the boat. Thanks to Danny for helping me with Walter's TV. Thanks to Elaine for trimming my tree. Thanks to Rick and Corrine for always being at the hospital when I can't. It would be a very lonely road to travel if I was totally alone.
Please keep the prayers coming. I need my husband back!!

Park Ridge

Patty says: Calling all visitors. Walter is ready for visitors at Park Ridge. Today (Tues) he was very alert and communicating with me. I felt the best connection with him in weeks.

Please help me get my husband back. Please go and tell him a story or just sit and show him how much you care. The Rabitz family needs your love and support.

Off On a trip Part 2

Just back from Park Ridge. Walt has been prodded and poked and bled yet again for even more tests. The good news is that his temperature is back down and the team in Emergency are doing a great job looking after him and trying to figure out what the infection is and the best way to treat it. They are going to keep him for at least a couple of days. The attending physcian was off to consult with the infectious disease specialist so perhaps something new will be found out to put a stop to all the bloody bugs doing their worst.

Patty was going to wait intil she knew exactly where in the hospital Walt would be spending the night and she would be heading home too.

Cheers
Corinne and Rick

Off on A Trip

Patty just called to say that Walt has yet another infection and is going to Park Ridge tonight. Patty will keep us posted on the results. Patty had asked the Hurlbut to do blood work today and it just came back with a very high white blood count and a temp of 101+.

Lots of prayers

Love to all.
Corinne
t

Phase 3

Rather than do the obvious and poke fun at the name "Hurl-butt", I feel like reflecting for a moment. The move to Walt's new temporary home feels like a new phase. In hindsight, Phase 1 was survival at Strong. Phase 2 was "WTF?" at St. Mary's . I'm going to call Phase 3 which has yet to play out, "Remarkable Upturn".

The new place is easy to get to and pleasant to visit--more so than a hospital. It's more of an elder care place but they seem capable of caring for Walt and getting his physical therapy started again. The rooms and public spaces have lots of windows to the outside which cheers up things. Walt's room has a nice, calming view and the staff has been friendly and supportive. Walt seems to be feeling good and is ready for visitors.

In the photo with Patty, Walt is having dinner in one of the public rooms. Walt's response to the room was "Wow". It was like eating at the old Edward's restaurant downtown (not the food--the atmosphere).

In the photo with Tim Charron, Tim is working with Walt's right arm to get it unclenched and to help Walt initiate some control of it. That clenching is part of the muscle "tone" problem you have heard about. Tim is able to get a lot of interaction out of Walt--it's pretty amazing, especially for a Charlotte graduate.

The success of Phase 3, Remarkable Upturn, will hinge in part on friends and family who can visit and interact with Walt. I hope you can participate.

New Place - Update

Visitors wanted. Walter is at the Hurlbut Home across from MCC (the college). It seems like an OK place. You can park in front of the home, walk in and press the button on the left wall and they will let you in. He is in room 25 at the moment (same room as St. Mary's)(weird). Danny and Lori (our neighbors) came to visit and he was pretty good. He said "Hi Danny" and "Hi Lori" in English-plain as day. He tried to socialize and did pretty well with Walterisms and smiles. I am so proud of him!! We will keep you posted. It will be great to have a new set of therapists work with him and hopefully help him.

Contact info: (Thanks Gino!)
The Hurlbut
1177 E Henrietta Rd
Rochester, NY 14623
(585) 424-4770

See you at The Hurlbut!

Goodbye St. Mary's!

Patty says: Tuesday, 11:30 a.m. St. Mary's just called. They are in my words "kicking him out." But that is not a bad thing. For now, he will be at the Hurlbert Home. They have offered a private bed and therapy. I will be paying 300.00 a day. And I will be fighting the insurance company. When Walter gets settled visitors would be welcome. Keep praying for his recovery and that insurance will kick in. Then we will send him to Northeast where he can recover with his mountains by his side to give him strength.

Thanks for all of your continued support!!

Almost had a Kodak moment

Walt's camera has had 3 shots left in it for a couple of months. I decided to ask him to finish up the roll on Saturday. He gave it a good effort but couldn't quite press the shutter button with only one hand.

As Patty mentioned, Walt had a good week compared to some recent ones. When I visited he tried talking with me--I think he may have been complaining about the "boots" that were on his feet to keep them from curling. Overall he looked relatively comfortable. Maybe he has beat his most recent infection.

I have reprinted Patty's recent message below. Walt may be leaving St. Mary's soon. I'm hoping he will be able shoot the rest of the pictures that are left before he leaves. If not, I hope someone uses it to record his last day at St. Mary's.

****************** From Patty *********************************
Patty says: Tom: Northeast is 1 hr from Albany off of the thruway. Walter has been accepted, now I have to convince insurance to pay for this (otherwise I have to pay 791.00 a day) Yikes! It is what it is.
Walter cannot have a garbage plate yet. He is on pureed food for now because he could not keep his head up to eat because of the "tone".
Thank you Tom for your continued support!! You are a wonderful, caring and kind friend. All friends should have your qualities!! The world would be a better place to live.
Thanks to everyone who visited Walter this week. He had a good week. Hope this continues!!
See you at St. Mary's!!

I could help you with that hump....What hump?

Walt and I finally got around to watching Young Frankenstein Thursday evening. He wasn't talking but he smiled a few times, especially when Igor (Marty Feldman at right) was on screen and when the monster (Peter Boyle) was shown lying prone on the "soon to be electrified" table.

Prior to the movie Walt was in the dining room, scribbling on a sheet of paper. It wasn't readable but he was certainly purposeful about it. He's was wearing his brace on his left foot. He seemed to have the sweats and a periodic tremor. I took him back to his room because there I could take off his helmet and put the fan indirectly on him which seemed to make him more comfortable. I put his hand brace on--that was tough given that his right hand was really clenched. I simply kept asking him to relax his hand and eventually he was able to ease it enough so that I could get his fingers around the brace.

In the room Walt wasn't interested in looking at pictures or TV, but he really locked-in to the movie. We got about half way through it before he nodded off in his chair at 8:30. If you feel like watching the rest of it with him, the DVD is still in the player. I would like to think that he appreciates both the humor of the movie and the rotten irony.

Brenda, Dreams, Beans and Caddy Shack

Walt's cousin Brenda came up last week from Florida to visit. She posed with Tip (seated) and Walt (reclined). If Brenda lived up here then Walt would be pretty spoiled and the St. Mary's staff would be pretty pissed.

I had a dream Friday night that Walt had recovered. I woke up relieved and hopeful. When I visited the hospital on Saturday I found Walt in the dining room intently going after everything on his lunch tray, but smeared with the baked beans that he was eating without utensils. I cleaned him up and took him back to his room. He wasn't talking or responding much even though he seemed alert. I put a rolly tray in front of him, and put the DVD player in front of that so that we could watch Caddyshack and split an apple turnover that I brought. He ate his half of the turnover then grabbed two tubes of ointment that were also on the rolly tray and tried to stick them in his mouth. I took them away and put them at a safe distance. I turned on the movie but he wasn't really interested. Patty called about that time and gave me an update on Walt's week. I mentioned to her that I had removed his hand brace when I was cleaning him up from lunch. At the mention of the brace Walt stuck out his hand and I gave it to him. I thought that was a good sign and told Pat, thinking that he wanted to put it back on. Pat asked me to gently exercise his right arm so I hung up with her and went to work with Walt. He took the brace and held it to his ear like a phone. I don't know if he thought the brace was a phone, or he was trying to tell me to give him the phone, or if he had wanted the phone when I was talking with Pat. I am completely useless trying to interpret his signals. Anyway, he seemed to think the brace was a phone and he seemed to get more and more uncomfortable when I took the brace to put on his right hand--he was sweating like crazy by that time. The brace went on fairly easily and he didn't wince or otherwise indicate that it hurt, but I don't know.
The phone rang again and this time it was Brenda. I gave Walt the phone and she talked to him for awhile. I couldn't understand his words but he was making an attempt. We lost the connection a few times so I held the phone for him and we stayed connected. When I checked with Brenda to ask if she was finished talking with Walt she had a request. Brenda said that she wasn't going to ask me to kiss Walt for her, but she asked me if I would blow him kisses and say they were from her. I told her "no way". His recovery is tough enough as it is--there's no sense driving him over the edge.

I continued to play the Caddyshack video--Rodney Dangerfield had just ripped a fart at the dinner table and said, "Hey, did somebody step on a duck?." Walt seemed to get more and more tired which I attributed to the Kenny Loggins music in the video. Just then, Walt had more visitors--Anna and David stopped by. David had driven up from Florida to visit. We chatted for awhile. Walt was pretty pale by then--David dried the sweat from Walt's face which seemed to relieve him a bit. Then David called the nurse to give Walter a change and we left the room. I showed David where the air hockey machine is if he happens to visit when it's available. The staff cleaned Walt up and put him in bed where he rested much more comfortably. I noticed that Walt's right hand wasn't clenched at all while he slept. I could easily straighten it out so that his hand was flat on his chest. I had been there a couple of hours by that time so I said goodbye while Anna and David stayed. Just as I got to the elevators I saw Lindsay who was coming up for a longer visit (she brought home work).

It was easier to visit when Walt was making daily progress back in June. I would rather help him work out than clean beans off his face. But in fact, one is just as important as the other. It's what he needs at the moment. I look forward to the day when that dream I had comes true.

The appointment

Hi all,

I just wanted to leave a quick update on the appointment my dad had with his brain surgeon on Wednesday. I was not there but my mom gave me the lowdown.

Dr. Schwalb is not going to put the bone flap back in my dad's head for another couple months. As many of you know, he has had a big scab on the side of his head where the injury was which has been progressively removed over the last few months. The remainder of the scab was removed by Dr. Schwalb's nurse (who happens to be a family friend!) on Wednesday and the doctor wants to wait a few months for that area to heal more. We are very worried about the fragile nature of his head due to the fact that he no longer has a posey bed at St. Mary's but we understand that he has to be in tip top shape in order to have another surgery. He is so tough!

My dad answered a few of the doctor's questions at the appointment (For example, Dr. Schwalb held up a pen and ask my dad what it was and he said pen. Yet, he had difficulty naming other common items) but it was a long day for him and he was extremely tired. Overall, we just have to hang in there and keep supporting him as much as we can. I started back at school and work this week in Buffalo so sadly, I will not be able to visit my dad as much as I was able to during the summer. Please continue to support my mom and uncle as best as you can, especially in my increasing but necessary absence. As we all have learned during this arduous process, it will take a village to help him be comfortable, feel supported, and get better. We truly appreciate all the support, prayers, and positive thoughts. Thank you.

L

Tuesday's News

It was good to see Walt last night and have dinner with him. My visit coincided with Aunt Anna and cousin Brenda and cousin Dave's' arrival so it was quite a social time we had.

Although not particularly chatty Walt was eating well (as usual) and I was very pleased to see how well he was using his fork and spoon and pouring his own milk into the cup. I took a peek at his note book and he had had a fair day with therapy and seemed tired. Late last week looked like some real progress was made again. Fingers crossed.

Walt is having a trip to Strong today to see about putting the bone back in his head. I am looking forward to hearing good news about that!

As I was leaving I was rewarded with a hug and a truly Walt smile. That certainly made my day!

Cheers To all
Corinne

Walt humbled at air hockey

I saw Walt this Saturday morning, August 25th. He was in the dining hall looking rather grumpy but very alert. He was in a bigger, unwieldly wheelchair that is made to be pushed from behind rather than being rolled by the user. I moved him down the hall where we could talk without the blare of the dining room television. We had a decent exchange. Walt is still having problems finding the right words, but he got them right sometimes. I think he understood pretty well. He said he didn't recognize me but he said Lindsey was in Buffalo. I have to admit that I generally did not understand his questions, but when I asked him if he wanted to play air hockey he plainly said, "absolutely not". I asked him why, because we have played a few times and he enjoyed it. He shrugged his shoulders and said "why" as in why bother. I rolled him down to the PT room anyway and fired up the table. His bigger wheelchair doesn't fit at the end of the table so he had to play from the side--that gave me a huge advantage. I think the score was about 57 to 1 after about 20 minutes of play.

Walt seemed to mellow out after the air hockey thrashing and after we spent some time together. He would do an interesting thing to exercise his right arm (the weak one.) He would grab his right wrist with his left hand and move the right hand up to his face to scratch. I thought that was pretty smart and that it also showed he was making an effort to do a little physical therapy on his own. I also asked him to shake my hand with his right one--I had to place my hand in his but nevertheless, his grip was better than the last time I checked.

Shortly before lunch we went back to his room and I set him up so that he could look through one of his illustrated military history books. I noticed that Walt's Posey bed is gone, the one with the zip-up canopy that confines him to the bed at night. Before leaving the hospital I told Walt that I would be in California this week and would check out the girls at the beach for him. He raised his eyebrows appropriately.

I think Walt may have been a bit contrary when I first got there but that seemed to pass.
I thought that Tom Wahl had a great comment yesterday that I have reprinted here. Tom said,
"Walter is my friend, and I can't stand by and watch him give up. Walt may have issues that will be with him for some time to come, but one of them should not be giving up.

When anyone stops by to visit Walter, please ask Walt to show you something physical he can do, or did in therapy recently. He needs to know everybody is watching and cares about his recovery. Don't take no for an answer. Insist on seeing or hearing something."

Most people, including Walt, respond positively to compassion like that.

Patty says: This week has been about the same for Walter. He is trying to get rid of the CDif infection and the UTI. Therapy is still not going that well. He is still struggling to walk and to get his words out in English.

My plea is to those people reading the blog to visit Walter. He needs brain stimulation!! Thanks to his dedicated friends for their lunchtime visits during the week. We still could use some guys to come for lunch!!! It is so very important for his well being that he has visitors. He loves to visit with his buddies. I know some of you guys are uncomfortable about visiting but we all are uncomfortable. Like I said before, life is not just fun and games. Someday we might need visitors to visit us. I could use some visits from his friends on weekends for lunch. I try to be there for dinner. I hate to think of him eating alone up there. Can anyone volunteer? You do not have to let me know. Just go up around 12:00. Just keep him company. People are always asking me "What can I do" There is only one thing. PLEASE VISIT! It DOES NOT have to be for hours. Just to keep him company.

Thank you again to Tim for your visits and support. Walter is lucky to have such a great and dedicated friend. Thanks to Tom and Ron for their dedication to Walter. Keep playing ball with Walter!! I have started reading to Walter to to stimulate his brain. There are many books in his room. Please read to him and show him the pictures in the book. He really enjoys that!!

Keep praying for my Walter!! I need him to come back home to us!! YOUR VISITS CAN HELP!!!

Patty says: Walter is hopefully going back up the roller coaster. He is more alert (after I had the doctor take him off of 2 drugs) and not having any more hallucinations!! He is reading the paper again (as best that you can with double vision and staying awake past dinner. As Tom said, he is playing baseball in his room with very good coordination. When I got there last night, they were going to give him a chest x-ray to make sure he does not have pneumonia. Keep your fingers and toes crossed. Every day is a new adventure (one that no one should have to experience in a lifetime).

Thanks to all that visited Walter last week. We really appreciate your visit. It will be a very very long road and your support is valued and appreciated by myself, Tip, Lindsay and Brian. Enjoy every day with a smile and a hug!! Luv ya-Patty

A new week

Hi all,

I have finally been able to log on to the watch after a veeeery busy few weeks moving. Better still I was able to spend the morning and early afternoon with Walt.
When I arrived he had just finished therapy and was hanging out in the hall. actually i think he was inching his way to the exit for an escape!!

it was good to see him awake and looking more alert. He was not talking well and did not know who i was but was quite happy to hang with me anyway. I took a peek at his therapy book and was very pleased to see that he had put in some great sessions. Aaron his physical therapist was particularly pleased with how he went this morning.

We went off for a second session just before lunch and Walt demonstrated a marked improvement in getting from the chair to the couch and back.

Elvira the speech therapist had ordered a regular meal for him at lunch to see how he handled it. i can tell you he made short work of the Buffalo chicken leg. Elvira has now Oked regular meals so if any of Walt's lunch companions can just cut the meat into manageable pieces that would be great.

Little by little Walt seems to be inching himself back from the latest setback. I have everything crossed that it continues in this direction. (No wonder I have such difficulty typing).

I will be in again on Wednesday to spend some time with our friend so will report in again. In the meantime it is great to read others experiences.
Cheers to Gino and Kathy and all the rest of our little community

Love
corinne

Patty says: My sweetie needs lots of prayers, love and support!! He cannot walk or talk. He is eating well though and he is definitely in there.

Thanks to all of his friends for their visits. Particularly Timmy (Barry) and Gary. Thanks for doing lunch for me. He really needs his male friends!! If any of his other friends can join him for lunch at 12:00 that would be great and Wally would really appreciate the visit.

Thanks to my nephew, Joe, for building a wheelchair ramp for Walter. We are lucky to have such a wonderful, caring nephew.

Thanks again to Lindsay, Bennett, and Brian for all that they have done around the house!!

Go Walter!!!!!!

Sunday, July 29

Walt was doing physical therapy when I visited. His leg lifts were good, his ability to stand was not so good. Notice that he pushes to the right because that is what feels "centered" to him. When he pushes like that, believe me, the therapist is working hard to keep him up.

We also tried to get Walt to work with that right hand by bouncing a balloon back and forth between me and him, but he kept using his left. We finished out the morning with over an hour at the air hockey table.

Walt's speech wasn't understandable to me except for phrases like "yes, no, thank you".

Everyone is waiting for his recovery to get on track again. Despite his setback, your visits can only help. Please continue your efforts on behalf of Walt and his family. It is very much appreciated, and is a generous and thoughtful thing to do.

Patty says:A special thanks to Walter's friends who gave him support and who spent time with him this week. We are truly grateful!
Walter will not be coming home this weekend. His physical therapist, Aaron, wants him to rest and stay in the hospital. He is still pretty tired and weak.

If you can visit him tomorrow, that would be great!!

Thanks again for all of your love and support. Please keep praying for Walter's recovery.

Back In the right direction

Hi all,

At last some better news. Walt was much more alert yesterday, He had a better day with his therapies and Kathy, he has started to talk again. It is still a mix of clarity and aphasia but after the horror past couple of weeks it is heartning to see some progress. I have not been able to see him during tharapy times the past couple of weeks so it was especially upsetting yesterday to see how weakenned his right arm and leg had become.

It was only 3 weeks ago that he walked from the therapy room back to his room on the walker. Please all pray extra hard that his health issues clear up and that he can just concentrate on his rehabilitation.

I am almost too scared to go today in case he has slipped again. This is sure some Roller Coaster ride. Patty your strength through this all is amazing.

Love to all the Bloggers.

Corinne

Pulling it together

It's Saturday and Walt seems to be pulling it together today. He is receiving shorter but frequent periods of rehabilitation. He had at least 4 sessions between breakfast and lunch.

Walt's workouts included some occupational therapy and lots of leg and ankle stretching, standing, walking using a walker, and entering and leaving a chair. If today is a good indication then things are certainly improving since his recent infection of the last week or two. His speech has also improved since a couple of days ago.

His appetite is good as well--Kathy and I brought him some fresh raspberries from the farm market and some strawberry strudel, also from the farm market. He chowed the strudel, saving the berries for later, I guess.

The plan is for Walt to be at home for the day on Sunday July 22. He definitely looks ready for it. But he said that cousin Rick should lose that pink, striped shirt.

Walt says, "yeh" to having visitors

I was in Los Angeles recently but even though I was far from Rochester I couldn't get away from reminders of Walt and his friends. Minutes from the airport I saw a parking garage named "Wally Park", and a short while later I saw a restaurant called "CoCo's". Wooooooooo.

Yesterday I took Walt a book of crossword puzzles that is in large print, and a bag of Duncan donuts that we scarfed down together. Over the past week I have been able to watch Walt's recent progress swing between "looking good" to "what the hell?". Last Thursday he was badly confused. Saturday he was a bit grouchy but more connected to reality. Yesterday (Monday) he seemed very aware but he is having great difficulty communicating. He talked a lot but the words and sounds he strung together sometimes did not form a comprehendable sentence. Because these episodes come and go it gives me hope that it isn't due to anything permanent but due to fluctuations in his physical state, infections and medications. For example, Patty and I witnessed Walt go into a loopy state shortly after taking one of his antibiotics.

Despite the communication difficulty, I feel like Walt and I have a pretty good time together. I asked him directly if he liked having people visit or would he rather be left alone. He made it clear he liked having visitors. So don't let his speech difficulty keep you away. I keep asking Walt questions and he keeps talking. I don't have a problem with acknowleding his predicament and neither does he. As Rick said in his comment today, just let him know that you are there for him.

Patty's Plea

Patty says: I have just come from my visit with Walter. He is VERY DEPRESSED. CAN ANYBODY READING THE BLOG HELP ME? WE ALL KNOW THAT THIS IS GOING TO BE A VERY LONG RECOVERY BUT I AM SO VERY DESPERATE. FOR THOSE WHO ARE READING THE BLOG CAN YOU SPARE 10 MIN TO VISIT A WONDERFUL MAN THAT IS IN NEED OF SOME LOVE AND ENCOURAGEMENT? WHERE ARE ALL OF HIS BUDDIES? HE NEEDS YOU NOW!!! LIFE IS NOT JUST PARTYING AND FUN. LIFE CAN GET VERY SAD AND DEPRESSING!! THIS IS HAPPENING TO MY HUSBAND NOW, AND HE NEEDS YOU ALL NOW. IF YOU ARE READING THIS BLOG, PLEASE COME UP AND MAKE HIM SMILE. WE CANNOT DO IT ALONE. WE HAVE TO GET HIM BACK TO US AND YOU ALL CAN HELP WITH A VISIT AND A SMILE. LUV YA ALL-PATTY

Bloody Hell, Not another Infection!!!!!

Excuse my bad language but I am just so frustrated and upset! Walt has yet another infection. It is a return of the clostridium one and they started him on the Flagyl this afternoon. The good news is at least we know what has been making him ill the last few days. They think that this might also be responsible for the increase in weakness in his right side and the aphasia and confusion which he has been experiencing increasingly the past couple of days.

This symptom was not only freaking me out but had the medical team scurrying around taking yet more blood and checking out all possible things. It was reassuring to see them so on the ball and concerned for our friend. He was also being sent to Strong today for a brain scan just to ensure that there is not anything else lurking.

Other good news is that the urinary tract infection has cleared up. It is a pity that bacteria has gotten so damn particular that one lot of antibiotics can't knock them all out!

Walt continues to inspire me. Although he is often down about not making progress he is really very uncomplaining about all the physical discomfort and pain he is experiencing. For example when the vampire arrived to draw blood today (she was actually a very nice, caring and very gentle lady) she had trouble finding a vein and Walt had to endure repeated attempts to get a couple that would bleed enough for the battery of blood work tests they are running. I kid you not there were 5 big bottles and 3 phials drawn for all the different tests. Throughout the whole process that took about 40 minutes Walt sat stoically without complaint except for the occasional "ouch". When she said that he was "very patient" I was pleased to see his wry smile and "not really" response. he gave me a look that clearly said that he would much rather have let fly with a string of expletives #***!&*%!

Well I feel better now at having gotten that out of my system.
lets hope tomorrow is better.

By the Way, Gino, the donuts were tasty!

Cheers
Corinne

Day passes, etc.

Patty says: Walter has come home 3 times on a day pass. I have given him an A+ for every visit. It is hard getting him in and out of the house. At times he is good with the walker and at times he is too weak. Tippy, Brian and Bennett usually carry the wheel chair into the house. We are trying to get a ramp to make it easier. He seems to love coming home even though is kitty still won't sit on his lap. I think that Sterling smells the medication on Walter. Walter also informed me yesterday that he cannot hear out of his left ear. He came outside to sit by the fire while Tippy cooked some great burgers on the grill. He is eating very well now which is one less worry. He had a good visit with my nephews, Joe and Josh and my friend Joanne. Although he is quiet, you could tell he was very happy and comfortable. Danny and Lori sat by the fire with Walter and he really enjoyed their visit too. I do notice that when other people visit besides family, that is the most beneficial to him. As Gino said, you all bring different experiences and memories to Walter and he really uses his brain to communicate.
Please try to stop by to see Walter-work friends, hunting buddies, high school buddies. He really enjoys being with the guys. Tippy bought him some Genny N/A and he seems to be pretty pleased with that beer.
A special thanks to Tippy- He has rose to the occasion to get Walter to and from the hospital on his pass days. I really could not bring him home without his help. Also, to Lindsay and Bennett for all they have done for me. You guys are very special. If you want to visit Walter at home, give me a call. He would love to see you all!! Please keep praying for his eyes, ear and that he will walk soon. Luv you all-Patty

Room 23 with a view

Patty reports that Walt has been moved to room 23 on the 5th floor. If you ignore the reflection of me in the yellow gown, you can see that he has a distant view of downtown Rochester. Also, Patty mentioned that Walt may be visiting home on July 4th if the doctor approves a day pass. She plans to post after that visit.

Monday morning I spent some time with Walt during his rehab sessions. One session was particularly fun--they have an air hockey table available. Dan the therapist helped Walt stand while Walt and I played a spirited game. Neither one of us played very well but I had the advantage because the puck did not quite fit into the slot (goal) on my side of the table. Thus I won by a score of 1 to 0. Some of you may recall that Walt used to be adept at the pinball tables at the California Brew House.

After air hockey Walt went through a considerable amount of training at the parallel bars to improve his walk. Here he is working with Aaron on making sure that he doesn't drag his right foot when stepping forward.

When finished with therapy we went to one of the computers that are available to patients to view "The Walt Watch". I enlarged the print so he could read the comments of support that you all send. He was keenly interested. Maybe we can talk him into writing his own post one of these days.

Walt still has his ups and downs physically and cognitively. On Monday he had a tough time getting his right hand to work at all with his knife and fork when eating lunch. Tuesday morning he thought that I was his cousin Rick. But when I look back in the blog to just a few weeks ago, it is plain that things have improved greatly. I asked the neuropsychologist about what friends and family could do for Walt to help his recovery. He said that one of the best things that we can do is to visit and interact with him. That helps both his capabilities and his well being.

gino

"All The Luxuries"

What a long, strange bike ride it's been.

Walt returned home on Saturday (June 30) for the first time since setting out for a spririted bike ride on that warm, spring day of March 13. Albeit a day visit from St. Mary's, it still marks a milestone in his recovery.

We picked him up Saturday morning. He was more than ready to go. A bit nervous in the stomach - he's often told me that as a kid, he would puke before some big event like Christmas Eve etc - and the "game face" on Walt was ready to go.

Tip did an extraordinary job helping his brother from wheelchair to car seat to walker. I think that Tip has a new career waiting for him after he finishes making the beer.

Once in the door Walt was ambling down the hallway, turning right past the kitchen table and stepping down into the living room. And on the right, what d'ya know, the couch is still there, and so is his spot on it! As swiftly as the eage flies - but not quite with the grace yet - our hero man-handled his walker over to the couch, set himself down, reached down to his left and yanked the recline lever. With the muted "thud" which accompanies the machinations of this mechanical marvel of modern mankind, Walt quite plainly and deliberately said "All the luxuries".

Having given him the remote control, and resigned to the fact that some things never change, I sat quietly as Walt flipped through the channels, ensconsed in the world of five hundred and something channels with pause, rewind, and fast forward.

The day went very well and I'm sure Patty will want to say a whole lot more so I won't steal any of her thunder.

On the way back to St. Mary's as Tip drove the minivan and Brian, Walt and I rode shotgun listening to the radio, I kept thinking that the only thing missing from this picture is the skis, boots and poles.

Cousin Rick

Patty says: Do not go up to the hospital from 9:30 to 5:30 tomorrow. Walter will be coming home on a day pass. He is doing well but still working on his walking. His right leg is still weak.

Thank you all for your continued love and support. Luv ya-Patty

I just wanted to post a quick picture from my time with my dad this weekend. I was able to spend a lot of time with him, which was great. I notice marked improvements every time I come, even though we still have to constantly affirm to him that he is improving both physically and mentally. Hopefully we will be able to take him out on a day pass sometime soon. Keep your fingers crossed!

A lot has been going on for us lately...from the bike race mentioned in Corinne's post to the LPGA to my brother getting his permit today (!!!) to my mom making a great recovery from her knee surgery to opening the pool for the first time without my dad teaching a new generation of neighborhood children how to masterfully string expletives together. We are so lucky to still have the chance to tell him about everything though and see his wry smile. I know he will be back in the game soon enough. Thanks for the continued support :)

...and Stronger

Hi All,
Was lucky enough to share Walt's physical therapy session today and see the progress he is making. It is truely awesome!!!! His balance is getting better and the right leg is getting stronger and he is better at swinging it through and taking bigger steps.

Also truely amazing was the improving clarity in memory.. both short term and long term. Unfortunately this made it especially hard because he wasn't allowed to come out for the bike races last night and he was remembering how much he enjoyed last year. Double bummer. By the way both professional races were won by Australians. Go Aussie! (For bloggers that don't know I am from Australia) Crikey!

Walt continues to be my hero. He is working sooooo hard. Patty and Lindsay created a miracle with their faith and the love and support from the Walt Watch community.

GO Walter.

Love to all
Coco

Getting stronger

Walt was busy again at the the physical therapy ward on Thursday morning. We watched and learned as Aaron, one of Walt's therapists, led him through several routines to strengthen his legs. Much of the work focuses on his right leg to bring it up to par with his left. Here we see Walt doing leg extensions with a weight on his right ankle, followed by leg lifts, followed by a picture of Brian getting training in helping his dad transfer from the chair and back.

Today's memorable Walt quote: "I don't drink anymore. I've lost half my personality."

PT

We saw Walt working with his physical therapist Monday afternoon. The photo shows an exercise in which he pulls himself up from his chair using the horizontal bar, and then watches in a mirror as he does toe raises and heel raises. The goal is to strengthen his calves and improve his balance. It was the last exercise of several that he did in that session.

Following PT was lunch. Walt is eating well now and polished off what was reputedly a pork sandwich, some yogurt, juice and something I couldn't identify.

Because feeding himself looks like it takes Walt so much effort, I find myself concentrating and watching intently as he eats. For example, he moves a spoon full of yogurt slowly and a bit unsteadily towards his mouth. I hold my breath wondering if that yogurt is going to make it to its destination. Just when I think that the spoon is about to dump the yogurt in his lap he scarfs it down. I breath again with relief then start the process all over again on the next bite. It's tiring.

All the things that we take for granted require an enormous effort for Walt at this point. Please continue to encourage him with calls, visits and messages.

The Great Wall-ter

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Saturday evening Cousin Rick brought Walt a gift from a recent visit to China. It is a keep sake engraved with chinese characters for, "The Great Wall" with additional characters for "ter". Thus, "The Great Wall-ter". Given his deadpan expression, Walt either thought it was a bad pun or he didn't get it.

We had a nice evening of conversation and a movie--this time we watched, "Barry Lyndon", a movie that Walt and I saw about 30 years ago. He was bored with it at first but later got into it when the killing began. We had to stop about half way through because the staff booted me out to give him a shower. Before I left one of the staff told me that she was the first person to meet him when he came to St. Mary's a couple of weeks ago. She remarked at his great progress since that day.

In the photo shown here you can see a "Bart Simpson" doll peaking out behind Walt--it's a gift from Lindsey. He also has a talking rabbit doll, a gift from Patty that says, "I love you" then makes a demented rabbit chuckle when he squeezes it. When he showed this to me the other day he said Patty was out of control. I laughed and said that I agreed.

After the movie

Our movie night at the hospital was excellent. The movie,

"Christmas Vacation"

gave us some laughs. Subsequently, Walt was allowed to complain about his physical state and his perceived lack of progress. After we got that out of the way we had a very nice conversation. I'll share just a few memorable moments from that conversation. He is extremely pleased with St. Mary's hospital and the staff. He said many loving things about his family (he is on the phone with Patty in the picture you see here). Lastly, he shared an absolutely accurate, but somewhat unflattering observation about one of our friends that convinces me that he has good humor, keen insight and continues to recover well. The evening ended with a promise to schedule another movie night. Bravo!

Wednesday

Good evening!

Today was another crazy day for my immediate family as my mom had arthroscopic knee surgery this afternoon. It was successful and she is home resting right now. I spent the afternoon at Park Ridge with her then went up to see my dad. It isn't fun to have both of your parents in the hospital on the same day but I am proud of both of them :)

I had a fun night with my dad. We watched the Yankees game and chatted. He is so funny and smart. He initiated and followed conversations and asked me questions about work and Bennett's current bike ride around Lake Ontario. That is all very promising and shows that his memory and ability to retain information seem to be improving. Obviously, he still gets frustrated but I just keep telling him how great he is doing and how proud of him we all are.

Thanks for checking in!

Thursday Night at the Movies

This Thursday , June 14th, a mini TV / DVD player is to be available in Walt's room--it's movie time!

Place: Walt's room at St Mary's, 5th floor

Time: After dinner (about 5:30?)

Movie: Most likely a comedy or perhaps Night of the Living Dead.

Free admission.

Water soakers welcome.

Bring your own popcorn.

The Cuckoo's Nest

Saturday morning, Walt was sitting in his wheelchair staring out the window when I arrived. He wanted to get into bed because he said he wasn't doing anything anyway. So we went on a chair ride of the 5th floor of St' Mary's. We suited Walt up in a gown and gloves and were off--slowly because Walt used his arms to push the chair about the first 20 feet. Then he told me to push instead.

As Rick mentioned here previously, the trauma rehab unit is no Disneyland--it feels a bit like the institution portrayed in the book/movie "One Flew Over the Cuckoo's Nest." For example, while pushing Walt's chair down the halls we overtook a woman who was pushing her twenty-something son in a wheelchair as well. As we passed by them, I heard a sound and then felt an impact on my buttocks. The woman's son had a plastic pistol that shoots small, non lethal projectiles. I had been wounded. I briefly entertained the thought of arming Walter with some sort of non-lethal weapon like a plastic bedpan and then doing some sort of jousting with wheelchairs. Instead we continued our tour around the not-so-sweet smelling halls then returned to his room.

I showed Walt the same pictures that I have been showing for the past few weeks. He enjoyed them and said that he had not seen them before. Although Walt wasn't cheerful he was talkative. He told me about puking on his shoes earlier in the week, he told me about the time that he had met Bennett when he was finishing a bike ride around Lake Ontario, and he told me about taking walks at Kodak where he would see dozens of deer. He asked me what my name was and said that he knew another "Cornell". I told him that that was me. He asked me how I new Corrine (via hospital visits) and he said that she had been a big help. He complained about the lack of stations on the hospital TV--someone has to ween him off that crap. He is still frustrated and concerned about his physical state and needs reassurance from visitors that he is moving ahead.

At 11 AM Walt and his physical therapist left for the rehab room where he had a workout scheduled. I missed the first part of his rehab because just as he left for his workout, Patty called his room and I talked with her for awhile exchanging updates on Walt. Thus I don't know if he had a chance to work on his walking or not. But I was there for his resistance routine in which he used a weighted bar (3 pounds) to do various curls and presses. His therapist was very nice--all the staff was very nice. Walt perked up when one of the doctors interviewed him--I didn't get her name but for those of you who may recognize her she was small and may be of Asian-Indian heritage. He respected her!

After the workout I pushed Walt to the dining room where there was a cafeteria style meal (ugh) waiting for him. I left him then, telling him to enjoy his lunch to which he replied, "one can only hope" or something equally dry.

I left a camera with Walt to use to take pictures of visitors and hospital staff. He took a couple of me and his nurse Kathy. Please remind him to take your picture when you visit. As always, I encourage everyone to visit. It is sad to see him alone--I think that it is at those times when he feels the outlook is darkest. Go there to see him and shed some light.

You Gotta Read this.

What a great day! I am not long home from visiting Walt and can't wait to bring all the Walt Watch Bloggers up to date!

Walt started walking again today.

Wow after only 4 days of therapy, this morning he was standing between the parallel bars and then walking down the length and back. I thought this was pretty cool. Admittedly it was a bit of a shuffle and the right leg is obviously weak. But then Aaron the physical therapist got a walking frame and had Walt stand himself up in that. Walt, (Mr sceptical) kept saying he couldn't do it but Aaron and I were having none of that. I threatened him with my big stick if he didn't keep going. Walt then walked up and around in the frame. About 20 ft. Aaron was very happy and said that Walt was doing very well. He graduated Walt from the parallel bars. Yahoo!

Another heartening thing was seeing Walt get his appetite back. He made short work of his lunch of soup, tuna sandwiches, dessert and cookies. He is also getting better with his fine motor coordination and wielding the "eatin irons" with greater skill! Lyndsay and Bennett arrived and I had such a good time telling them of the morning's activities.

By this stage we were feeling pretty happy with how far Walt had progressed in the few days. But he had a few more surprises in store.

There was another physical therapy session after lunch and I think Walt wanted to show off for Lyndsay and Bennett because not only did he walk again in the walker, this time he added stairs to the routine. Up and down he went. I gotta tell you I cried when he did it and I am crying again now thinking about it. But of course Walt wouldn't even acknowledge that it was any big deal.

After that it was back to his room for a well earned rest. But before he could doze off, Dick and Bernie arrived with some great old pictures. They were happy as it is the first time in ages that he has been awake for a visit. The Speech therapist arrived but didn't have to take him away as he was getting plenty of talking practice right here. She explained that the quietness of his voice is because he is not breathing deeply enough to push the words out. She has him taking deep breaths and tells him to shout. She suggested that we also remind him to do this when he is talking too quietly.

Finally Walt was allowed to lay down and nap for an hour before one more physical therapy session at 3.30. In this session, Aaron had Walt use his wheelchair as the walker. As Walt did this it became apparent that he was having balance issues. What felt upright to him was actually a strong list to the right and his right leg was not straitening all the way. Aaron was discussing what strategies he could do to help that when Walt asked for crutches. This was not something that Aaron had ever used for this problem but he was happy to give it a go as it was the first time that Mr grumpy (Walt) had shown any enthusiasm for the process. Well didn't he get up and walk several steps with the crutches! Next week they will try him on the forearm crutches as they think it will give him a greater awareness of where his body is in space. They think that Walt may have discovered a new therapy!

Totally awesome don't you think?

Walter is a Super Star!!!!

Love to you all
Cheers
Corinne (CoCo)

Gown up, Glove up, but Don't Give up!

I have just contributed to Patty's request today (see previous post) and strongly encourage everybody who reads this blog to do so as well.

Here's the deal at St. Mary's: Park in the Parking Garage because it's free and secure. You'll enter the facility through a door from the garage, and go to the first floor. Walk down the long corridor (don't veer off to the Bishop Kearney suite). You'll need to sign-in at the reception desk and get a pass. They'll buzz you in and Walt is on the 5th floor (if I remember correctly). As you come off the elevator, keep bearing right and he's at the end of the hall (sorry I don't remember the room number).

You'll have to put on a gown and a pair of latex gloves, which you'll find conveniently located on a cart outside his room. That's the policy right now at least. The upside is that there is a game room on the floor with all sorts of board/card games like checkers, Boggle, Scrabble, etc. etc. and a couple of computer screens which look they have internet access. Some of the other residents patients hang out in the hallways - it ain't Disneyland, but it's a bit more lively and upbeat than the hospital.

Corinne and I visited Walt Saturday while Linsday was there. We stayed for a good while, and accompanied Lindsay and Walt to the dining room where he ate, along with other residents and memebers of their families and friends. If you want to eat though, you have to bring your own.

Like anything, the experience at St. Mary's is what we make it. Walt needs our help to make his experience at St. Mary's comforting, loving and supportive. All of the physical therapy, occ. thereapy, speech therapy and cognitive therapy that the staff delivers will have so much more of an impact if Walt has people he loves around him day by day. Loving, emotional support cannot be purchased through health insurance or delivered through institutions.

So let's gown-up, glove-up, and go up to St. Mary's and give back to Walt what Walt has so freely given to all of us.

Things to do with your used latex gloves:

• Draw a face on the palm and blow it up. Glue it to the end of a popsicle stick. Pop it up and down over the wall in your cubicle and see how long it takes to drive your office mate to notice.
• Have a contest with the family to see who can make the most disgusting sound by letting the air out of the blown-up latex glove.
• Fill them with water and have a water balloon toss. Why not save several pair for a festive 4th of July with the kiddies!

Things to do with your used gown:

• Write your initials on the tag with a Sharpie and see if you get the same gown the next time you visit.
• Cut two small holes in middle and use it as a halloween costume - be the first on your block to be a yellow ghost!

Small request from Patty

From my mom: Now that Walter is at St. Mary's I think that it would be fun to see who is reading the blog for updates on Walter. Please go to comments and sign your names with a quick message. When he comes home, he will be reading this blog. To do this, choose an identity (will be other), and then after you type in your message to the right in the square, press publish your comment. It will be fun to see where in the world people are reading this blog. Lindsay just informed me that she will bring her laptop to St. Mary's and he can read the good wishes himself. Thank you and please start this round of cheers. Luv you all-Patty

From Lindsay: I spent some time with my dad yesterday afternoon. He slept most of the time but he did wake up to have some dinner (though he was not happy about it) and we had a short conversation. He seems ready to start therapy and really wants full use of his legs again. I am so excited for all the progress he will make!

from Patty

Patty says: What a happy day!! I have been waiting for this day for months!!! The social worker came into the room at 11:00 today and told me they had accepted Walter at St. Mary's. I said wahoo (like Walter's Homer Simpson) and he immediately looked for his sneakers and put them on. I have told him every day that this is the way to home. He will have to work very hard and he still likes to sleep alot. He has made great strides every day for the past three weeks and I am so proud of him!! Our friend Leslie who works for his brain surgeon by coincidence, came in and reminded me that it was touch and go for a while. I will never forget those horrible and fearful moments that he almost left us. We are so lucky to have him with us. He is still having trouble with short and long term memory and I know this could take years to come back. I showed him some pictures today and he did not recognize himself or his loving kitties. Yes, it is sad and depressing but he is still with us. When I left him tonight, he said "I do not know if I will ever get better:. And I said "Of course you will". When you guys visit, let him know how far he has come and how well he is doing. I am convinced that St. Mary's will help him come back to us and will help him walk again. He is very anxious to start therapy!!! I will look forward to helping with his therapy and seeing more and more progress!! He can have visitors but he might be beat after all that work during the day. He will be doing 3 hours of therapy at intermitent times of the day. But he will be done at 3:00 for the day. I will keep you posted with his progress. Keep praying for his continued success with his recovery. I am hoping to have him home for the 4th of July (one of his favorite holidays)!! We just might have to have some fireworks to welcome him home!! See you at St. Mary's!! Luv ya-Patty

ST Mary's Part 2

Hi All,
Lindsay just called with the good news that Walt is on his way to St Mary's as I am typing. We don't know what room or anything yet.

Apparently when he heard that he was going Walt put on one of his shoes so we can assume from that that he is ready and rearing to go.

He is so much stonger and healthier than last time and more than ready for the challenge.

Stay tuned for next instalements.
Cheers
Corinne

Quick Update

Hi all. St. Mary's came again this afternoon to look at my dad. They are going to come back on Friday morning to reevaluate him. They are being verrrrry cautious about taking him, we think because of what happened last time. We really want him to go soon though because he really wants to walk again and has been making so much progress. Anyway, I know people have been staying away until he is moved but he definitely still needs visitors at the hospital until he goes so if anyone has some time, it would be great if you could stop up in the next few days. I know he sleeps a lot but once he is awake, he will usually talk with you or try and do some exercises. Thanks so much!

We will post here when we find out for sure when he will be moved.

Also, one of the main restrictions with his diet right now is that his food, whatever it is, has to be soft.

Menu Suggestions - Post Here

Got lots of dietary questions from those of you out there who are culinarily inclined and I will do my utmost here to provide guidance:

The hospital feeds him regular menu items - he gets to choose from starters, "entrees" (no kidding, that's what it says on the menu), deserts and so forth. The only dietary restrictions seem to be that the meal is reasonably well balanced, low in processed sugar. High in protein, good carbs. Remember the food pyramid! http://en.wikipedia.org/wiki/Image:USDA_Food_Pyramid.gif

Ideas from the UK cancer research site (spice it up though, we won the war because our soldiers would eat the cooking!) http://www.cancerhelp.org.uk/help/default.asp?page=17012

And from wikipedia http://en.wikipedia.org/wiki/Soft_diet

And my ideas:
Yogurt - I've seen him eat it over the weekend, he likes it.
Bananas - He's told me in the past that bananas are a very efficient fruit
Eggs - The feed him eggs in the hospital.
Beans and Greens - Wegmans sells them pre-made, damn good. Just watch out a couple of hours afterward...
Meatloaf
Quiche - Patty was going to bring him some tonight, and he does love his quiche (even though real men don't eat it)
Pasta - any shape will do (they have spaghetti on le menu du Strong)

Post yours as comments!

Regards,

Cousin Rick

Disappointing Tuesday

Just got off the phone with Patty, and they are going to delay moving Walt to St. Mary's because of a calorie count. The family is very disappointed, having counted on the move all weekend.

Seems that Walt is not eating enough on his own. He takes a few bites of this-and-that, here-and-there and apparently he needs to take more than a few bites of these-and-those to go along with the this-and-that.

And most of all, those bites need to be counted. If Walt eats something while you are in the room, please tell the nurse so they can count the calories he's consumed.

Let us ponder the following:
If a tree falls in the forest and nobody hears it, does it make a sound?
If Walt eats and the nurses don't log it, does it make a difference?

And while exercising the logical and philosophical workings of our minds, let us also consider:
What is an example of a high-calorie, high nutritional-value, soft-textured food?
Is it something that Walt would like?
Is it perishable without refrigeration?
Is it labled?

Feel free to post your recipes here. And let us know what the food critic in 7.34oo thinks.

To Patty, Brian, Lindsay and Tip: keep the faith!

St. Mary's

I just talked to my mom and she told me that since tomorrow is a holiday, they are not going to move my dad to St. Mary's until Tuesday. I don't really understand why but oh well. I still don't get why he is in the cardiac unit either! Anyway, we will keep you posted. Thanks for checking in!

Pumping Iron

Walt had quite a group of visitors Saturday evening--Patty, Brian 1, Brian 2 and Brian 2's daughter, Corrine, Rick, Kathy and me.

Patty put Walt to work doing his bike pedaling exercises and I got him pumping iron. I took up a couple of light dumbells for Walt to work his arms and grip. He handled a five pounder without difficulty and pounded out a few sets of hammer curls. It left him a bit winded but was a great start nevertheless. I wanted to let him try some overhead dumbell presses but nobody except me thought it was a good idea for him to be waving a five pound dumbell above his head injury. So we didn't do that. When Kathy & I left the hospital Corrine was getting out her "encouragement" stick as part of her "no pain no gain" therapy program.

Walt is currently scheduled to move to St. Mary's hospital on Memorial Day where he can obtain more intensive rehab . Check the blog or call the hospital to confirm his move if you decide to visit this coming week.

From Patty

Patty says: Geno-great post. Where do you come upwith these pictures? Thank you to all who have visited the castaway. He has been sleeping alot this week-as some of you visitors know. He did say to me "when am I going to feel better"? I think he had a touch of sinus problems this week with a headache. He gets these normally. He does not like the food so I have been asked to bring him up some of his favorites. He is doing well on therapy. He rides a bike (HELP) when he sits in his chair. He is currently riding 4 times in 20 minutes-3 minutes at a time. Pretty good for a guy who slept for 5 days and could not stick out his tongue upon command for weeks. We are all so proud of Walter. Isobel-he loved you sweatshirt. He tore of the tags and put it on himself. I tried to help but he wanted to do it himself. He will do well at St. Mary's. They are coming on Fri. to evaluate him. Hopefully he will go there in the next couple of weeks. That is why we need to get him off the feeding tube and eating!!! I will start cooking some of his favorite meals but at the moment he is limited. It needs to be soft. If anyone has some good ideas-let me know. Thanks again to all for everything you have done for our family. It is most appreciated!!! Luv ya-Patty

May 24, 2007 11:40 AM