Friday, September 28, 2007

I could help you with that hump....What hump?


Walt and I finally got around to watching Young Frankenstein Thursday evening. He wasn't talking but he smiled a few times, especially when Igor (Marty Feldman at right) was on screen and when the monster (Peter Boyle) was shown lying prone on the "soon to be electrified" table.
Prior to the movie Walt was in the dining room, scribbling on a sheet of paper. It wasn't readable but he was certainly purposeful about it. He's was wearing his brace on his left foot. He seemed to have the sweats and a periodic tremor. I took him back to his room because there I could take off his helmet and put the fan indirectly on him which seemed to make him more comfortable. I put his hand brace on--that was tough given that his right hand was really clenched. I simply kept asking him to relax his hand and eventually he was able to ease it enough so that I could get his fingers around the brace.
In the room Walt wasn't interested in looking at pictures or TV, but he really locked-in to the movie. We got about half way through it before he nodded off in his chair at 8:30. If you feel like watching the rest of it with him, the DVD is still in the player. I would like to think that he appreciates both the humor of the movie and the rotten irony.

Sunday, September 16, 2007

Brenda, Dreams, Beans and Caddy Shack










Walt's cousin Brenda came up last week from Florida to visit. She posed with Tip (seated) and Walt (reclined). If Brenda lived up here then Walt would be pretty spoiled and the St. Mary's staff would be pretty pissed.

I had a dream Friday night that Walt had recovered. I woke up relieved and hopeful. When I visited the hospital on Saturday I found Walt in the dining room intently going after everything on his lunch tray, but smeared with the baked beans that he was eating without utensils. I cleaned him up and took him back to his room. He wasn't talking or responding much even though he seemed alert. I put a rolly tray in front of him, and put the DVD player in front of that so that we could watch Caddyshack and split an apple turnover that I brought. He ate his half of the turnover then grabbed two tubes of ointment that were also on the rolly tray and tried to stick them in his mouth. I took them away and put them at a safe distance. I turned on the movie but he wasn't really interested. Patty called about that time and gave me an update on Walt's week. I mentioned to her that I had removed his hand brace when I was cleaning him up from lunch. At the mention of the brace Walt stuck out his hand and I gave it to him. I thought that was a good sign and told Pat, thinking that he wanted to put it back on. Pat asked me to gently exercise his right arm so I hung up with her and went to work with Walt. He took the brace and held it to his ear like a phone. I don't know if he thought the brace was a phone, or he was trying to tell me to give him the phone, or if he had wanted the phone when I was talking with Pat. I am completely useless trying to interpret his signals. Anyway, he seemed to think the brace was a phone and he seemed to get more and more uncomfortable when I took the brace to put on his right hand--he was sweating like crazy by that time. The brace went on fairly easily and he didn't wince or otherwise indicate that it hurt, but I don't know.
The phone rang again and this time it was Brenda. I gave Walt the phone and she talked to him for awhile. I couldn't understand his words but he was making an attempt. We lost the connection a few times so I held the phone for him and we stayed connected. When I checked with Brenda to ask if she was finished talking with Walt she had a request. Brenda said that she wasn't going to ask me to kiss Walt for her, but she asked me if I would blow him kisses and say they were from her. I told her "no way". His recovery is tough enough as it is--there's no sense driving him over the edge.

I continued to play the Caddyshack video--Rodney Dangerfield had just ripped a fart at the dinner table and said, "Hey, did somebody step on a duck?." Walt seemed to get more and more tired which I attributed to the Kenny Loggins music in the video. Just then, Walt had more visitors--Anna and David stopped by. David had driven up from Florida to visit. We chatted for awhile. Walt was pretty pale by then--David dried the sweat from Walt's face which seemed to relieve him a bit. Then David called the nurse to give Walter a change and we left the room. I showed David where the air hockey machine is if he happens to visit when it's available. The staff cleaned Walt up and put him in bed where he rested much more comfortably. I noticed that Walt's right hand wasn't clenched at all while he slept. I could easily straighten it out so that his hand was flat on his chest. I had been there a couple of hours by that time so I said goodbye while Anna and David stayed. Just as I got to the elevators I saw Lindsay who was coming up for a longer visit (she brought home work).

It was easier to visit when Walt was making daily progress back in June. I would rather help him work out than clean beans off his face. But in fact, one is just as important as the other. It's what he needs at the moment. I look forward to the day when that dream I had comes true.

Friday, September 7, 2007

The appointment

Hi all,

I just wanted to leave a quick update on the appointment my dad had with his brain surgeon on Wednesday. I was not there but my mom gave me the lowdown.

Dr. Schwalb is not going to put the bone flap back in my dad's head for another couple months. As many of you know, he has had a big scab on the side of his head where the injury was which has been progressively removed over the last few months. The remainder of the scab was removed by Dr. Schwalb's nurse (who happens to be a family friend!) on Wednesday and the doctor wants to wait a few months for that area to heal more. We are very worried about the fragile nature of his head due to the fact that he no longer has a posey bed at St. Mary's but we understand that he has to be in tip top shape in order to have another surgery. He is so tough!

My dad answered a few of the doctor's questions at the appointment (For example, Dr. Schwalb held up a pen and ask my dad what it was and he said pen. Yet, he had difficulty naming other common items) but it was a long day for him and he was extremely tired. Overall, we just have to hang in there and keep supporting him as much as we can. I started back at school and work this week in Buffalo so sadly, I will not be able to visit my dad as much as I was able to during the summer. Please continue to support my mom and uncle as best as you can, especially in my increasing but necessary absence. As we all have learned during this arduous process, it will take a village to help him be comfortable, feel supported, and get better. We truly appreciate all the support, prayers, and positive thoughts. Thank you.

L

Wednesday, September 5, 2007

Tuesday's News

It was good to see Walt last night and have dinner with him. My visit coincided with Aunt Anna and cousin Brenda and cousin Dave's' arrival so it was quite a social time we had.

Although not particularly chatty Walt was eating well (as usual) and I was very pleased to see how well he was using his fork and spoon and pouring his own milk into the cup. I took a peek at his note book and he had had a fair day with therapy and seemed tired. Late last week looked like some real progress was made again. Fingers crossed.

Walt is having a trip to Strong today to see about putting the bone back in his head. I am looking forward to hearing good news about that!

As I was leaving I was rewarded with a hug and a truly Walt smile. That certainly made my day!

Cheers To all
Corinne